Autism Awareness Blog Hop and Giveaway

This is my contribution to RJ Scott’s annual Autism Awareness Blog Hop.

Autism Awareness

Facts about Autism: — Autism is NOT a disease.

— Comorbid conditions often associated with autism include Fragile X, allergies, asthma, epilepsy, bowel disease, gastrointestinal/digestive disorders, persistent viral infections, PANDAS, feeding disorders, anxiety disorder, bipolar disorder, ADHD, Tourette Syndrome, OCD, sensory integration dysfunction, sleeping disorders, immune disorders, autoimmune disorders, and neuroinflammation.

 

When Youngest was in primary school, (group 3, I think, so, around the age of 6/7), I thought she might be autistic. There were certain behaviours that seemed… off, for lack of a better word, and she had a way of not looking at you when you were talking to her. School didn’t seem to agree and tried to convince me that, even though she was the only one out of a class of 36 pupils showing said behaviour, it was probably just a phase.

From that moment on things with Youngest seemed to… well, escalate isn’t exactly the right word, but getting through to her became more difficult. Not all the time, her behaviour seemed to go through up and down waves. So, we had her tested. During the interview before the tests, we were told that Youngest seemed too social to be autistic, yet the report after the tests supported my worries more than their opinion. Somewhere among a slew of appointments that followed, we finally received a diagnosis of mild Tourette syndrome, accompanied by ADD and a touch of compulsive behaviour. Of course, that set off another slew of appointments to help Youngest and to help us help Youngest. (and in a way help Eldest, too, by following some parenting courses, cause… you have to try something, right?)

It’s been a learning curve for all of us. She’s 22 now, intelligent, though lazy as F (and often proud of it), and one of the kindest, most generous persons you’ll ever meet. Her tics seems to have taken a back seat, but her ADD is a constant companion.

 

GIVEAWAY

One randomly chosen winner will have a choice of my ebook backlist in format of choice (pdf/epub/mobi).

Entering is simple: leaving a comment and a valid email adress is enough, though you’re free to share your own story. I’d love to hear them.

The contest will run until midnight on the 30th, and I’ll announce (and contact via email) the winners May 1st.

 

Note: 36 seems like an awful lot, but they had it covered. Two teachers, of which one handled the teaching, and the other kept an eye on the pupils who lagged behind or were ahead. We thought it worked very well, for school work at least.

 

Posted in I have a life too Tagged with: ,
9 comments on “Autism Awareness Blog Hop and Giveaway
  1. Tanja says:

    Thank you for participating in RJ’s Autism Awareness Blog Hop. I am glad you got the problems with Youngest early. Mothers know best.
    It reminds me a lot about our Eldest. He also was in a class of around 36. Fairly common in the country where I live, but it didn’t work out for him. He had to have special education and it was the best thing that could happen to him. He was diagnosed with autism and a light mental disability. He is now 30 years old with a steady job and a lovely girlfriend, but his autism will always be a part of him. That being said it is what makes him, well him.

    • I’m glad your son has found his path in life.

      And yes, it definitely is part of who they are.
      Youngest didn’t need special education, though she was guided and helped by the secondary school’s care program, which allows for both internal and external help for the student. It took her two years longer to complete secondary school, but we can’t solely blame her Tourette’s or ADD for that… *points to comment about laziness* 😉

  2. Yvonne says:

    It would be nice if ‘the system’ would listen to mothers more…….my Youngest was struggling a few years ago, we got some help but not the right kind or enough and now she has full blown OCD. And I’m fighting again to get her help. Looks like she’ll get a referral to the OCD-team next week so I’m relieved today.
    Glad you got help for your Youngest in the end.

    • It would be nice, yes 🙂
      While we’re often too close to the case, sometimes we see things more closely, too.

      Yay for getting a referral!! I hope it’ll bring your Youngest what she needs.

  3. susana says:

    Thank you for sharing your story with us, Blaine. I guess schools do as much as they can; I was a teacher for some time, and I remember having to multiply myself to deal with twenty students of different ages and very different learning progressions…. You still tried to do your best, but sometimes that’s not enough. It is obvious that the educative system has to change, at least in my country

    • Oh, no doubt. Teachers are often stretched far too thin, and their work load includes much more than just teaching.

      And though a lot of schools try hard to tailoring education to pupils, the teaching methods are often still aimed towards tailoring pupils to the education (if that makes sense)

      I admire teachers at any time…
      though, yes, as a mother, I did find myself ‘fighting’ teachers at time.

  4. H.B. says:

    Thank you for sharing your story with us and for taking part in the hop =) My sister is special needs and it hasn’t always had an easy time of it growing up. She’s grown now but i worry for her all the time.

  5. Hey, Everyone 🙂

    I’m so sorry to leave you all hanging for a week. It’s been a good month of awareness, and thank you all for participating.

    Random.org spit out a winner for me, and
    THE WINNER IS…..*drum roll*

    Yvonne

    Congratulations 🙂
    Expect an email from me in the next 48 hours to discuss your choice of prize.

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